For professionals
Epilepsy affects about 112,000 young people under the age of 25, Most health, education and care professionals will work with a child who has epilepsy at some point.
It is essential for professionals to understand the issues facing the family such as diagnosis, treatment, emotional impact and living with epilepsy. Certain co-morbidities commonly occur and families may need help managing behaviour, language and communication and other multisensory impairments.
Young Epilepsy has a wide range of resources for both professionals and families to help them learn about, and manage the condition. These include downloadable record sheets such as individual healthcare plans and emergency treatment records.
Resources
Young Epilepsy provides training with series of training events around the country and offers tailor made packages for individual organisations.
Our handbooks provide families with information and sources of support and were developed for professionals to use with parents to help them understand epilepsy.
Specially written for children and teenagers, our informative seizure diaries can encourage effective communication between families and professionals. They also help young people take increasing responsibility for living with, and managing their own condition.
This is particularly important during the transitions facing teenagers (e.g. paediatric to adult healthcare services and primary to secondary education). As young adults this group will face the challenges of leaving home, going to college and starting work. The professional has an important role in supporting them through these various challenges.
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