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Parents handbooks

Young Epilepsy’s information service has published a second FREE handbook for parents.

This new publication Complex Childhood Epilepsy – A Parent’s Handbook is aimed at parents whose children have added complications in addition to their epilepsy. It explains some of the more serious epilepsies, often referred to as epilepsy plus, difficult to control epilepsy or intractable epilepsy, and it provides detailed information and help to identify extra services which may be needed in order to support a child with more complex needs.

Epilepsy - A Parent's Handbook

Currently being re-printed. New stock available soon.

Young Epilepsy's first handbook was the result of feedback from parents and professionals – it has made a real difference and given a boost to families living with epilepsy. The clearly written 96 page A5 handbook is designed to help parents find their way through the maze of information and services.

A step-by-step approach means that parents and older children can dip in and out of the handbook, so that the whole family can start to understand epilepsy and how to get the most of out of life once someone is diagnosed.

This handbook includes:

• A simple guide to epilepsy and its diagnosis and treatment tips for dealing with school holidays and travel living with epilepsy and the emotional issues
• Epilepsy and teenagers guide to useful websites, forums, books and DVDs sample seizure and health record charts

It has received an overwhelming ‘thumbs up’ and is about to be printed for the third time.

Caroline, whose nine year old daughter was diagnosed with epilepsy at age seven said: I feel that you are putting the real live parent in focus, there are so many different aspects to managing this condition and I feel all of them are covered here. There is something new that jumps out at me each time I look. She adds I like the fact that the sections give the information in a way that suits the time poor parent!

Both handbooks, along with details of children's and teens seizure diaries, are available from the Young Epilepsy's information service by This e-mail address is being protected from spambots. You need JavaScript enabled to view it. or telephone 01342 832243 ext. 508.

Click here to Download the Parents Handbooks information flyer

Sample pages from the Handbooks

• Emergency Medication
• Seizure Description
• Individual Health Plan

Let us know if you have received one of our parent handbooks or epilepsy diaries by using our Publications feedback form.